Yesterday was my emergency bladder surgery. Things did not go as planned, because it's me and things never go as planned. Only half of the surgery was able to be done as planned. There was simply too much scar tissue for her to finish with her plan. So I was sent home with multiple tubes … Continue reading Health Update (Post Surgery)
Tag: spina bifida
Health Update
Those of you who follow me on social media have no doubt seen my ER visits over the weekend. For those that haven't seen anything, long story short, I ended up in the ER Friday night and last night (Sunday) as well. I've gotten a ton of messages asking if I'm okay and what happened … Continue reading Health Update
We Don’t Owe You A Goddamn Thing
I've been contemplating how to write this blog for a few days. Instinctively I find myself wheeling on eggshells over this topic when I really shouldn't. As disabled people we're expected to answer everyone's questions with a smile, always be polite even when people are being rude and offensive and we're expected to never show … Continue reading We Don’t Owe You A Goddamn Thing
PTSD in Disabled Children
This post may be triggering for those of you who grew up in hospitals like I did. The phrases in quotes are directly from my childhood medical records. My diagnosis is actually C-PTSD, which is a more complex version of PTSD, but for this post I have just used the term PTSD to explain things. … Continue reading PTSD in Disabled Children
Things Abled People Have Said to Disabled People (Part 2)
Hey ya'll, My first Things Abled People Have Said to Disabled People was such a big hit I decided to do it again. So here's part 2: If you just prayed hard enough you could walk. While walking in my braces at a hospital one of the valet drivers started yelling, "Run Forrest, run!" at … Continue reading Things Abled People Have Said to Disabled People (Part 2)
What is Chiari Malformation?
September is here and so begins fall, and Chiari Malformation Awareness Month. Now if you don't know anyone with Chiari chances are you've never heard of it. But Chiari isn't rare, not by a long shot. Chiari affects 1/110 people but it's most commonly found on autopsies. Here are some commonly unknown things about Chiari … Continue reading What is Chiari Malformation?
Things Abled People Have Said To Disabled People
I grew up disabled in an abled world. I didn't have many disabled friends and often times the abled people around me didn't know how to handle me. I think a lot of people think of the hardest cases of disability when they hear the world "disabled". I've personally seen people's faces drop when they … Continue reading Things Abled People Have Said To Disabled People
A Day in the Life of Someone with C-PTSD
I was diagnosed with C-PTSD about four and a half years ago. Getting the diagnosis was long overdue and has changed my life for the better in so many ways. I'm going to try to keep this post trigger free, but there will be talk of medical C-PTSD/needles so proceed with caution if you need … Continue reading A Day in the Life of Someone with C-PTSD
